The words of cancer

The minute I uttered the words, “blood pressure,” I felt a balloon burst in me. It was more like an implosion; air was sucked out of my lungs, replaced by something wet-like. It happened in less than a second. My eyes filled with water. I had to look away.

My reaction caught me by surprise because I wasn’t even thinking about Rusty at the time. The words I said bore no context to the cancer; I was lamenting to a friend at a bar how the dearth of cabs in Singapore would one day surely lead me to seek medical attention for elevated blood levels.

But in that second, those words took me back to that little white room at New York-Presbyterian Hospital, where “blood pressure” was the arbiter of Rusty’s survival. Every other hour we monitored his numbers to see if his body would endure another dose of chemotherapy. That was three months before he died.

I shook under the weight of the two words, and as my mind wandered, more came: insurance forms, contrast solution, doctor’s appointment, platelets, subcutaneous tumors, initialise here, dehydration, clinical trial, scans, nurse practitioner, response rates, alcohol swabs, refills, bags of blood, emergency room, do-not-resuscitate.

These were the words that defined a lifetime for me, the words that forced themselves into my common experience, the words that my tongue reluctantly became familiar with.

In the last two months, I haven’t said, or heard much of these words. Rusty’s death not only released him from his suffering, it released me too. Grief may be my new imprisoner, but I know it will not stand up to love. In claiming back the words of everyday life, I piece back a little of myself, and with each new piece in place, I feel more solid, more clear-headed about my feelings and what to do with them.

Though I still live each day on the edge of water, I give thanks every morning for being onshore. The sea, once menacing, threatens me no more. When I wade, I am not afraid. I look out into the distance and see the sun on the horizon, beginning to rise. Its light is simple, magnificent.

I say to myself, “If only you could see this, Rusty,” and immediately I know he does.

11 Responses to “The words of cancer”

  1. Caiyun Says:

    Nan ren give me a call?

  2. laurie Says:

    I am glad that you are beginning to reclaim everyday life, Yen.

    You are in my thoughts and prayers.

    Love,
    Laurie

  3. Libby Kistler Says:

    Dear Yen -

    …”I feel more solid, more clear-headed about my feelings and what to do with them…” Your quote is filled with words that seem to say you have started the healing process. I’m sure some days it feels like one step forward and two steps back, but that is to be expected.

    You write so beautifully…what a gift! Thank you for sharing it.

    You remain in our daily thoughts and prayers. If there is anything else we can do for you, please remember we are only a phone call or email away!

    Love,

    ~Libby~

  4. Shan Says:

    Hi Yen. It’s been a couple of weeks since I last left you a message. Thought I’d drop a line.
    I have to agree with Libby. You convey so much in your writing. You make me understand exactly how you feel and what you’re going through. And that endears me to you even more than a lot of people whom I actually know personally.
    Are you in Singapore yet?

  5. BLU Says:

    (love)

  6. laurie Says:

    I’m thinking of you.

    Hugs,
    Laurie

  7. blu Says:

    (more love)

  8. laurie Says:

    (more hugs)

  9. threetoedsloth Says:

    My boyfriend’s mom has cancer, and is likely to die from it within the next month, and so this blog gets more and more consoling to read. I hope things are getting a little easier!

  10. Katrina Says:

    Hi. It’s been a while. I hope you’re ok.

  11. laurie Says:

    I’m concerned as well. Please let us know you are OK.

    Hugs,
    Laurie

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