Storm in a soup bowl
Week in review
I lost my temper today while doing the dishes.
I had just made some fresh butternut squash soup for Rusty, and the counter-top was a mess. We ran out of paper towels. The floor was sticky with trash juice from too many days of collected household debris. I threw the remaining dishes into the sink, swung shut the kitchen cabinets with a dramatic bang. The utensils inside shuddered metallically. When Rusty asks if I am okay, I mutter yes and leave the apartment for a cigarette outside.
It’s been a week since Rusty’s third infusion of the anti-CTLA4 drug, Medarex. His fevers are now almost all-day long. On a good day, he has about three or four hours when he is able to walk outside for fresh air. The rest of the time he’s laid up on the couch, too tired to do anything else. Since the clinical trial started last month, he’s already lost 20lbs. Dr Wolchok wants Rusty to come in tomorrow for a blood transfusion, and to run some tests. We may have to stay overnight for a few days.
I am worried about a million different little things. It feels impossible to sort them out. I am not used to letting soiled cutlery upset me like this, but I understand my anger is a manifestation of these undercurrent anxieties. It pains me to see Rusty so weak and withdrawn. What use am I to him if I can’t even keep the kitchen clean?
January 9th, 2007 at 8:55 pm
I’m sorry to hear that Jesse is so weak. You know that just being there and supporting him through this is all that matters right now.
January 10th, 2007 at 3:04 am
Hang in there. I think you’ve had to deal with a lot in a very short time - remember, you need to reserve some time for yourself.
January 11th, 2007 at 8:46 pm
Sending thoughts and prayers from Montana.
January 13th, 2007 at 9:07 pm
I am sending you all kinds of good vibes your way and I am keeping you and Jesse in my prayers.
January 13th, 2007 at 11:46 pm
(hug)
it’s hard to keep balance when your world is turned upside down and you have to have stamina for two
don’t be too hard on yourself, one step at a time
thinking of you both…….