Hope, intraveneously

Bureaucracy, by baboon
The third infusion
It is almost 2pm. I flinch involuntarily when the research nurse pushes a needle into Rusty’s arm.
We are at Memorial Sloan Kettering on 53rd and Lexington Ave, and in a few minutes Rusty will receive another dose of the new drug, Medarex. This is the first time I am sitting with him through the treatment, even though it will already be his third infusion. There is one more infusion after this, and then we will take scans. Looking at the modest, palm-sized plastic bag of clear liquid, I wonder if this clinical trial is what will save our future. Instinctively, out of habit, I pray under my breath.
When Dr Ejadi walks into the examination room, we describe to him the drug’s side effects since Rusty’s first infusion last month. “It’s nothing,” Rusty says, “Mostly fevers, night sweats, itching, no big deal.”
“Every night, though,” I add grimly. Dr Ejadi is attentive. When he speaks, words like “positive” and “activity” are thrown about. Our spirits are somewhat lifted. At the same time, we guard ourselves against reckless hope.
I feel an odd sense of comfort surrounded by the familiarity of white coats and whirring medical equipment. Behind a curtained cubicle, Rusty’s blood is drawn into eight skinny, glass vials. “To check for any kind of immunological response,” the nurse explains. Rusty is tired. He takes a nap on the stretcher while hooked to a weary-looking infusion pump. It beeps - as if to affirm its presence - like a heart beat.
December 29th, 2006 at 6:45 pm
I’ve read your blog for quite some time and it touches me deeply. I’ve hesitated to comment because I didn’t want to intrude. Just know that somewhere in eastern Montana, the mother of a young gay man is praying that this clinical trial will save your future.
December 30th, 2006 at 5:13 am
Glad you are there for him and am very hopeful that his T-cells are winning.
January 1st, 2007 at 1:33 pm
Happy New Year to you and Jesse, Yen!
Here’s to much hope and improved health in 2007.
January 3rd, 2007 at 6:18 pm
Thank you for your prayers, dmmgmfm. I appreciate all the positive energy my writings help to canvass through this blog. If there’s anything I can help you with, do let me know. Barbara, I hope so too.
Helen: Happy New Year! Cheers to you!
January 3rd, 2007 at 9:48 pm
Health to Jesse, and happiness to you.
I hate hospitals. I truly do.
Strength and peace to you both.
January 15th, 2007 at 3:51 am
[…] To keep the fevers at bay, we rotate between Percocet, Motrin and Tylenol at timed intervals. I am also making more stops at the laundromat. Every night, Jesse goes through at least four T-shirts because of his night sweats. On the sleeper couch, towels are set on his side to prevent drenching the microfibre. We haven’t slept in the bedroom for weeks. This Thursday, we go in for our final infusion. Then, we wait for scans. […]